My dog, Lyla, and I down in Charleston, SC.
Anencephaly: a brain defect in which a baby is born without parts of its brain and skull. Almost all babies die shortly after birth, according to the CDC. If a baby does survive, it would spend it's entire life severely mentally handicapped.View Story ▼Anencephaly: a brain defect in which a baby is born without parts of its brain and skull. Almost all babies die shortly after birth, according to the CDC. If a baby does survive, it would spend its entire life severely mentally handicapped. This is how my baby sister was taken from our family. My mother reminded me throughout my childhood that my sister was in a better place, and she would have struggled her whole life if God hadn't taken her when he did. 25 years later, and knowing what challenges my sister would have faced is what motivates me to not only never use the r-word, but to also spread the message and my story to others. When I joined a sorority in college, I chose mine based on the philanthropies- The Special Olympics and the S. June Smith Center for Developmentally Delayed Children. It meant so much to me to join an organization that supported those wonderful causes. I try to find as many ways as I can in my adult life now to spread the word to end the word!
About Katie Horn:My name is Katie and I am from South Carolina. I have a deep love and compassion for all people. I want to encourage more young people to get out there and motivate others to join in this movement!View less ▲